29/01/2026
The Brethren of the Johnny McNeill Lodge 10377 were extremely pleased to welcome the Nicolson family, who we have been assisting for the past 6 years, to our Lodge on 26th Jan 2026 whilst we were in open order.
Having two young children already, Ellie – now 9yo and Callum now 13yo (who is also a registered young carer), Brian and Amanda were blessed with the arrival of a baby girl early in 2019. Unfortunately, she (Ava – now 6yo) was born with all of her internal organs outside of her body (Gastroschisis) which was further compounded by other serious conditions including a 14.5cm hole in her stomach. The expected survival rate for babies born with this condition is generally quite good but in Ava’s case this was greatly reduced due to the complications and her future looked extremely bleak.
All of this meant that she had to undergo numerous surgeries at the Sick Children's Hospital in Edinburgh who, having never dealt with this level of severity, were in constant communications with a hospital in Boston, USA who had experience with this level of complexity on 2 previous occasions - such is the rarity of Ava’s conditions.
During this very worrying time, both of the parents had to work full time jobs but one of them in turn spent the night at the hospital to be on hand as Ava went through many distressing operations. This is where the Johnny McNeill Lodge stepped in to assist with the inherent costs to the family.
I am happy to say that Ava was able to leave hospital in October 2019 (pictured here with Bro Eddie Irvine ROH). Since that time Ava has had many long and painful surgeries and at the age of 6yo still has more to come. The family have shown the most extraordinary strength and resilience in the manner in which they have coped with this distressing situation and I am also extremely pleased to report that they are now proud parents of Daniel who (after complications) was born in October 2025 by C-Section and weighed in at 5lbs 3oz – both mother and baby Daniel are doing well.
Whilst we have started to raise funds in order to send this family to Cyprus under the Cyprus Province’s HOALT programme, we are now planning other fund-raising events throughout 2026 to further bolster these funds and ensure that this worthiest of families truly have a “Holiday Of A Lifetime”.